Paving the Way Through Pain: The Lin Health Approach

This post is sponsored by Lin Health. All thoughts and opinions shared are my own.

Chronic pain can be extremely lonely, overwhelming, and debilitating. It impacts 50 million Americans and is widely considered untreatable by the medical community. This is where Lin Health, a cutting-edge online, comprehensive pain treatment, and management program comes into play. Launched just three months ago for patients, this digital health solution is on a mission to help transform the lives of those who deal with pain daily. 

Founder Abigail Hirsch, who is a clinical psychologist, was inspired to create Lin Health because she found it incredibly troubling how common pain is and discovered the lack of support available to the patient community.

“I refused to believe that these people were subjected to a life of suffering without answers. When we were looking for funding, I was shocked how many MDs wondered why we would want to work with THOSE people, who seek drugs or disability claims. I had never heard patients talked about in such a horrible manner. And I am so excited to get to work every day with THOSE people. It turns out THOSE people are survivors, fighters, mothers, husbands… wonderful people for whom the medical community has not delivered. I can’t tell you how exciting it is to wake up every day and know we get to keep helping people, many of whom have struggled for so long, finally get on the path to better.”

And this is a path that Lin Health’s Director of Product, Alissa Link, is quite familiar with. Alissa was diagnosed with Crohn’s disease as a freshman in college after years of misguided diagnoses and countless rounds of tests, and experienced relief from the condition using Lin’s model of care. 

“This is truly my calling. My experience with pain and chronic illness has shaped my entire career! This deep experiential knowledge gives me a tremendous amount of empathy for those who are suffering from chronic conditions, and an intimate appreciation for the faults and friction points within the healthcare system. Where I see a broken system, I know there has to be a better way, and every day I feel grateful and invigorated building a new care model that can fill those gaps and offer the type of support that people truly need to heal.”

A photo of Alissa shortly after her Crohn’s disease diagnosis

In 2013, Alissa tried to taper off one of her medications and had one of the most intense periods of symptoms in her entire journey with Crohn’s. She developed a fistula and had surgery to remove 10 cm of her small intestine. After the surgery, instead of going on a biologic like her doctor advised to prevent disease recurrence, she chose to make lifestyle changes by switching her diet and using a range of stress-management techniques that have kept her in remission and medication-free ever since.

The Ins and Outs of The New Care Model

Since Lin Health opened their proverbial door to patient members in May, 2021, thousands of chronic illness patients have signed up to learn more about this integrative digital health solution for chronic pain.

Abigail explains that Lin Health empowers its members by looking at “a full person picture” and taking a step back to see “the whole elephant.” 

“Once we are all seeing the same complete picture, we also provide member-specific resources to both learn more about what kind of “elephant” they are coping with and what are the best tools for taming their pain beast. And then, piece-by-piece, slowly and steadily, our coaches go down the journey of building a new approach to pain together with our members.”

The team at Lin Health wants every physician, behavioral health specialist, physical therapist, and nutritionist to learn about modern pain science. 

“Too many people out there are hearing things from well-intentioned providers who are accidentally making their patients’ pain worse — when, a simple switch to sharing current understandings of pain, could empower patients to hop on the train to better! And of course, I want everyone who is suffering from pain that could be reduced or resolved to have access to good, science-based treatment and help,” said Abigail.

Lin Health is powered by real people who can really help. They are not a chat-bot trying to fit us into a box, or a patient education platform lacking human interactions. 

“We give you a customized treatment plan built specifically for you. And we pair you with a compassionate, caring, and helpful health coach who will be with you every step of your journey on your path towards better,” explained Abigail.

The Holistic Approach to Managing Pain

Chronic pain treatment usually relies primarily on prescription drugs that are designed to temporarily suppress symptoms with little regard for other factors that might be contributing to the pain. 

“An integrative, or “holistic,” approach that includes the right prescription drugs to manage symptoms, but also utilizes non-invasive treatments that are focused on helping people create real, sustainable improvements in their pain levels and functioning. These complementary treatments can include areas in your life that are important but neglected by the traditional pain model, such as sleep, behavioral health, mental health, smoking, weight, etc.,” said Abigail. 

Life with Crohn’s has provided Alissa with perspective that helps her empathize with Lin Health members and understand where they are coming from. Her advice? 

“Stay hopeful and grateful. Be kind to yourself. Thank your body and brain for the things you can do and avoid dwelling in what you can’t. Simple shifts in your perception and attitude can ripple into large impacts. Trust your gut (literally! and listen to what your body is telling you. For example, it was so obvious to me that stress caused my symptoms, yet no doctor ever talked about this or what to do about it. A quote that really helped flip my perspective on my stress and symptoms comes from Jon Kabbat-Zin: “You can’t stop the waves, but you can learn how to surf.” I’m grateful every day for the lessons Crohn’s has taught me and how my disease has guided my career path and enabled me to help others.”

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Nori Health helps IBD patients re-gain control: How you can get free early access

This article is sponsored by Nori Health. All thoughts and opinions shared are my own.

When Roeland Pater was diagnosed with Crohn’s disease nearly 20 years ago at age 19 there was a lot he didn’t realize and a lot he tried to ignore. He felt like he was on cruise control the first few years after surgery led him to remission. A few years later, his IBD took a turn and so did his perspective on his health.

“I started to realize that everything I did in life was impacting my disease. Suddenly, I couldn’t do whatever I wanted when I wanted. I became cautious of my actions and decisions. I tried to get a better grasp of how my IBD was impacting my life by receiving personalized care, but I was struggling trying to find a way to do that,” explained Roeland, Founder of Nori Health.

He noticed that during his medical treatment, he experienced a lack of support and education between hospital appointments, with little to no focus on quality of life or emphasis on how he was living day-to-day. Like many with IBD, this left Roeland feeling frustrated, misunderstood, and like there was no hope in controlling his condition.

The inspiration behind Nori Health

As a professional in the tech industry, this caused a proverbial light bulb to go off in Roeland’s head. He identified this massive gap in IBD care and decided to dedicate his life to solving the problem, with the goal of helping others. He recognized the need for a digital solution to help people like himself better manage and control their disease through daily behaviors. This is how the concept and mission for Nori Health was created. The company received an investment two years ago, which drove the concept into a real product and an app.

“Research shows that people living with a chronic inflammatory disease typically experience a 30% lower quality of life when compared to healthy individuals. Closing this gap is our mission. We believe this can be done by improving the understanding of the disease and its triggers through education and disease management. We aim to give patients in our program a sense of control over their disease management,” said Roeland.

How the Nori Health app works

The Nori Health app offers an 8-week program for IBD patients, guided by Nori, a digital coach. Through regular conversations (text-based—like WhatsApp) with Nori you receive personalized insights on factors that are proven to impact quality of life, and symptoms like pain and fatigue. These tips can be saved to your personal dashboard, and you can implement them into your daily routine, helping to keep your IBD under control.

“Most apps on the market are focused on a tracking model. This puts a lot of responsibility in the hands of the patient to monitor their daily activities and to discover patterns that might trigger symptoms. We changed this model around to best support the patients. Nori guides the patients through their health journey, with personalized, evidence-based factors. Nori provides the user with actionable tips that can be saved in the app, which can then be easily implemented into daily routines and lead to significant change,” said Roeland.

You can think of Nori as an artificial intelligence chat coach. You will work together to discover the lifestyle factors that impact how you feel and learn about simple changes you can make to gain more control of your disease. The end goal? To have less pain, more energy, and less strain on your mental health. Changes include everything from forming a new hydration routine, to talking to others about your condition, to reaching a point of acceptance of living with a chronic disease.

Main areas of focus include:

  • Stress
  • Hydration
  • Exercise
  • Diet
  • Mental Health
  • Pain
  • Low Energy
  • Sleep

“We would like to emphasize the importance of finishing the 8-week program. Just like taking a full course of antibiotics, the true benefit from the app comes from completing the entire course of the program,” said Roeland.

The app is not currently open to the public, but I’m excited to offer 100 of my Lights, Camera, Crohn’s readers direct early access!

Getting started:

  • Download the Nori Health app for iPhone here and Android access here.
  • During registration use access code TEST212 for free access to the full program. 
  • As you are given free access to the app, you will be asked to provide feedback on your progress (this is in-app, and anonymous). The Nori Health team will reach out to you by email to collect feedback about your experience as well.

Hopes for the future 

Nori Health is deeply rooted in recognizing the power of community. The program was not only developed by an IBD patient but created thanks to the input of more than 600 patients in England, Netherlands, Belgium, France, and beyond. By participating in this initial launch, you can continue to provide valued feedback and guidance so that the team at Nori Health can make the appropriate tweaks and further understand unmet needs. So far, the feedback has been overwhelmingly positive and has shown that patients can be supported throughout their patient journey—whether they are newly diagnosed or a veteran patient.

“We’ve seen an average of 34% improvement in daily management (diet, stress, and exercising on a daily basis) with people who completed the 8-week program,” said Roeland. “Half of the participants whose social lives were compromised due to symptoms, started to reconnect with friends and loved ones. These are the types of improvements and shifts we had aspired to see happen when we created the app.”

By working with patients like himself, Roeland says these valuable insights have changed Nori Health’s focus and influenced them to go much deeper into the factors that improve quality of life.