An innovative app for all chronic illnesses: Meet Corra

This post is sponsored by Corra. All thoughts and opinions shared are my own.

For as long as Elya Lane can remember she had signs and symptoms of a health condition. It wasn’t until college that she received her official diagnosis of Ehlers Danlos Syndrome and POTS. She says her poor health started to spiral with other comorbidities popping up, the worst of which was chronic UTIs that left her whole body in crippling, burning pain and weak from the antibiotics. Elya’s personal journey with chronic illness inspired her to create the Corra App. This week on Lights, Camera, Crohn’s we learn about how she made her dream a reality and how she hopes to improve peoples’ lives.

The breaking point

“I was constantly plagued with fears of antibiotic resistance, infection complications, or complications from long term antibiotic use. I got to the point where I was so sick that I wrote letters to my kids and my family in case something happened to me. I started tracking all our passwords and making videos for my husband on where our important files were, how different things were stored, all the kids’ data, etc. While I tried to face this potential outcome bravely, I was devastated imagining my kids growing up without a mom,” said Elya.

As she navigated these dark and daunting days, the despair caused her to think about how she could fight back and regain control of her health.

“I started to religiously track my health in journals before transferring to Excel spreadsheets. I was so frustrated by how exhausting and impossible it felt to crunch that much data, so I turned to searching for a symptom track and correlative software to help me. I downloaded and tried every single one I could find – but none met my needs. Some even gave me back faulty data which made me angry. That’s when I decided to create a solution myself,” she explained.

In 2020, after losing access to all her healthcare management tools, and with her health declining rapidly, she decided to create Corra.

The meaning of Corra

There are quite a few chronic illness apps on the market, some that even attempt to offer correlative insights. Corra is short for correlations. Elya wanted to identify correlations in her health so that she could find her triggers and optimize her lifestyle.

Here’s what sets Corra apart from other chronic illness apps on the market:

  • The algorithm was custom built by Corra’s chief data scientist, Simeon Wilson, who has a master’s in quantitative economics from UCLA. “We are not aware of any software that exists that compares to what Corra is currently offering with our correlative algorithm.”
  • Corra was designed by individuals with chronic illness. “Not just me! While the idea and original designs are all mine, we brought on more than 200 beta testers with various chronic illnesses to provide their feedback and help us tailor the app to the needs of the chronic illness community. Even now, we continue to rely on the insights and feedback from the community to enhance and adjust the app. I want Corra to always be designed by and created for our community.”
  • We correlate with nutrition in an accurate and helpful way. “I believe nutrition plays a massive role in our health so one of our key focuses with our algorithm was to be able to correlate seamlessly with nutrition inputs.”
  • Corra does not sell user’s data. “We don’t scrape your data from your device or browsing history, we don’t use your data to sell you anything, we don’t share your data with third parties. Your data is yours alone. As an individual with a chronic illness who often feels more like a commodity than a person, making sure people can receive personalized insights into their health without signing away their privacy is incredibly important to me.”

Corra’s bells and whistles to check out

  • The ability to track health data in one place without having to use five different apps to log information. “My favorite part of Corra is of course the correlations, because getting detailed insights like that about my health is equivalent to having a team of data scientists run extensive tests on my health and provide me reports. It’s life changing to be able to learn about my health overtime and create a custom-built lifestyle that caters to my future.”
  • Discovering positive and negative correlations. “You may receive insight that something has x% chance of increasing or decreasing a symptom. I think being able to get data on the things that are helping is just as important as being able to identify triggers.”
  • The ability to log appointments, download PDFs of your data to share with my doctor, track medications and supplements, track mood and stress levels, etc. “I’m also extremely excited about all the upcoming integrations we have in the works! Soon we will be connected to Fitbit and Apple Health with Garmin, Cronometer, Weather data, and hopefully Oura coming shortly after! Over time we will continue to integrate with as many devices and apps as possible so users can have all their data in one location!”

A promising future

Elya says being able to learn what foods, activities, supplements, and medications help or cause symptoms has enabled her to have a much better understanding of how best to manage her health conditions.

“I’ve been told to go vegan, cut out red meat, don’t eat dairy, sugar, gluten, eat paleo, try a carnivore diet, go vegetarian, and try cutting out leafy greens… what I found with Corra is that I didn’t need to make these drastic nutrition changes, I only needed to cut out some foods in each of those categories. For example, I discovered that I have a high trigger correlation with ground beef. I can eat steak and other red meat, but not ground beef. Similarly, chicken thighs are a trigger for me, but chicken breast is not. Same with gluten, there are some gluten products that are triggering for me, but not all gluten triggers me. Being able to identify exactly which foods to cut out, rather than willy nilly cutting out entire food groups or going on drastic diet changes, has been an absolute game changer.”

Elya has also discovered that cold and flu medications like Mucinex are major triggers for her. This helped her realize why she would get a horrible flare a few days after coming down with a cold or flu.

“Now, I try to manage my colds and flus with other medicine to try to prevent the flare on top of the cold. It’s also important to note that I’m not cured! I have to manage my diet and my activities and my supplements every day. The difference is, I’m no longer throwing shots in the dark, I now have the information I need to manage my condition to the best of my ability.”

Information really is power, and it has given Elya control over her life and reduced her anxiety. Because of Corra, she is now coming up on two years without the need for daily antibiotics. It’s been over 2 years since she visited the emergency room.

I’ve found that medical providers are far more willing to accept unbiased data from an algorithm than trust my verbal expression of my experience, so in that way Corra becomes my advocate and backs up my statements,” said Elya.

She says her health conditions have caused her to go through depression, isolation, and hopelessness. But her hope for Corra is two-fold.

“First, I believe it can help others identify their triggers and optimize their life so that their conditions can become more manageable, but I also hope that Corra can be a beacon of light for those struggling to see they are not alone. There are so many steps between the start of symptoms and any kind of treatment let alone cure (depending on if your condition is even curable)… and I want to be the one that goes into the trenches and helps people who are suffering the most. So many people in the chronic illness community get forgotten or left with “your test results are normal” when they know there is something wrong with them. I want to create a company that comes alongside them and lifts them up and allows them to have their voices heard.”

Downloading Corra

You can download Corra directly from the App store or the Android playstore. There is a free version as well as premium access. The premium version is $7.99/month or $24.99 if you enroll for a 6-month subscription. Elya is looking for Corra Insiders who are interested in getting free access to the app. By joining the Insiders group, you get a first look at upcoming features. This provides you the opportunity to share feedback on what you do/don’t like or would like to see improved or added in the future. Sign up for the Corra Insiders program here.

Nori Health helps IBD patients re-gain control: How you can get free early access

This article is sponsored by Nori Health. All thoughts and opinions shared are my own.

When Roeland Pater was diagnosed with Crohn’s disease nearly 20 years ago at age 19 there was a lot he didn’t realize and a lot he tried to ignore. He felt like he was on cruise control the first few years after surgery led him to remission. A few years later, his IBD took a turn and so did his perspective on his health.

“I started to realize that everything I did in life was impacting my disease. Suddenly, I couldn’t do whatever I wanted when I wanted. I became cautious of my actions and decisions. I tried to get a better grasp of how my IBD was impacting my life by receiving personalized care, but I was struggling trying to find a way to do that,” explained Roeland, Founder of Nori Health.

He noticed that during his medical treatment, he experienced a lack of support and education between hospital appointments, with little to no focus on quality of life or emphasis on how he was living day-to-day. Like many with IBD, this left Roeland feeling frustrated, misunderstood, and like there was no hope in controlling his condition.

The inspiration behind Nori Health

As a professional in the tech industry, this caused a proverbial light bulb to go off in Roeland’s head. He identified this massive gap in IBD care and decided to dedicate his life to solving the problem, with the goal of helping others. He recognized the need for a digital solution to help people like himself better manage and control their disease through daily behaviors. This is how the concept and mission for Nori Health was created. The company received an investment two years ago, which drove the concept into a real product and an app.

“Research shows that people living with a chronic inflammatory disease typically experience a 30% lower quality of life when compared to healthy individuals. Closing this gap is our mission. We believe this can be done by improving the understanding of the disease and its triggers through education and disease management. We aim to give patients in our program a sense of control over their disease management,” said Roeland.

How the Nori Health app works

The Nori Health app offers an 8-week program for IBD patients, guided by Nori, a digital coach. Through regular conversations (text-based—like WhatsApp) with Nori you receive personalized insights on factors that are proven to impact quality of life, and symptoms like pain and fatigue. These tips can be saved to your personal dashboard, and you can implement them into your daily routine, helping to keep your IBD under control.

“Most apps on the market are focused on a tracking model. This puts a lot of responsibility in the hands of the patient to monitor their daily activities and to discover patterns that might trigger symptoms. We changed this model around to best support the patients. Nori guides the patients through their health journey, with personalized, evidence-based factors. Nori provides the user with actionable tips that can be saved in the app, which can then be easily implemented into daily routines and lead to significant change,” said Roeland.

You can think of Nori as an artificial intelligence chat coach. You will work together to discover the lifestyle factors that impact how you feel and learn about simple changes you can make to gain more control of your disease. The end goal? To have less pain, more energy, and less strain on your mental health. Changes include everything from forming a new hydration routine, to talking to others about your condition, to reaching a point of acceptance of living with a chronic disease.

Main areas of focus include:

  • Stress
  • Hydration
  • Exercise
  • Diet
  • Mental Health
  • Pain
  • Low Energy
  • Sleep

“We would like to emphasize the importance of finishing the 8-week program. Just like taking a full course of antibiotics, the true benefit from the app comes from completing the entire course of the program,” said Roeland.

The app is not currently open to the public, but I’m excited to offer 100 of my Lights, Camera, Crohn’s readers direct early access!

Getting started:

  • Download the Nori Health app for iPhone here and Android access here.
  • During registration use access code TEST212 for free access to the full program. 
  • As you are given free access to the app, you will be asked to provide feedback on your progress (this is in-app, and anonymous). The Nori Health team will reach out to you by email to collect feedback about your experience as well.

Hopes for the future 

Nori Health is deeply rooted in recognizing the power of community. The program was not only developed by an IBD patient but created thanks to the input of more than 600 patients in England, Netherlands, Belgium, France, and beyond. By participating in this initial launch, you can continue to provide valued feedback and guidance so that the team at Nori Health can make the appropriate tweaks and further understand unmet needs. So far, the feedback has been overwhelmingly positive and has shown that patients can be supported throughout their patient journey—whether they are newly diagnosed or a veteran patient.

“We’ve seen an average of 34% improvement in daily management (diet, stress, and exercising on a daily basis) with people who completed the 8-week program,” said Roeland. “Half of the participants whose social lives were compromised due to symptoms, started to reconnect with friends and loved ones. These are the types of improvements and shifts we had aspired to see happen when we created the app.”

By working with patients like himself, Roeland says these valuable insights have changed Nori Health’s focus and influenced them to go much deeper into the factors that improve quality of life.

Tactics for Utilizing a Health Diary to take on your IBD

Many of us struggle to manage our chronic conditions, between ongoing appointments, day to day life, and coping with the unpredictable symptoms of our conditions. This is where our mobile phones come in handy. Thanks to ever-evolving technology, we can feel empowered and a bit more in control of our overall well-being by tracking, managing, and learning about our ongoing health treatment.

Going with the adage of what gets measured gets improved. There are a few things we can do to make managing our chronic disease(s) easier. The first step is keeping your care team in the loop, the second is following through on your care plan consistently, and the last is to focus on monitoring and potentially improving your treatment plan as needed.

Having a Care Team Can Help

We all utilize the help of others to maintain our health one way or another. The case may also be that you could be taking care of others.

As an example, in the CareClinic health diary app, you can add caregivers phone numbers to quickly save all information in one place for times of need. careteam_screenAdditionally, users can enable the sharing of “Progress Reports” which include adherence information and all other modalities to optimize your health. Sometimes a caregiver may not be aware of what you need to take and when, this too can be shared via the “Share Care Plans” functionality.

Sticking to Your Care Plan Can Be Easy

A care plan from your doctor may encompass taking certain medications at a certain time. However, a comprehensive care plan is much more than that. A care plan is your “self care to-do list” which will enable rapid health improvements.

It may include eating healthier, eating at a certain time, tracking and managing your calories or sugar levels. Some other things that can be added to a care plan may include tracking activities, therapies and even setting reminders to check certain measurements and symptoms throughout the day.

care_plan

A care plan is everything you need to do to maintain good health. Adding these values will reduce cognitive burden and help you remain on track. An app such as the CareClinic app can provide alerts, notifications and warnings based on your care plan, even better.

Monitoring Progress and Adjusting Your Health Accordingly

Patients often wonder if there is a point in maintaining a health diary. It may make sense to use a calendar or reminders to be notified when to take medications, but are there any inherent benefits to recording when medication was taken, or how we felt afterwards in a diary? reminders

The answer as you can imagine by now is an astounding “Yes, there is a point and a need.” By recording this pertinent information in a health diary, you no longer have to guess and see if a certain medication is causing adverse reactions or flare-ups. You’re taking the guesswork out the picture and providing yourself with more clarity.

Apps are now capable of leveraging AI to automatically help you figure out what’s working and what’s not. Even if the app is not able to make these correlations, your care team will appreciate the undertaking and potentially understand your health a bit better. When you provide data in a structured way to professionals, they can better learn and tweak their treatment for you, no matter what condition you are up against.

Tracking Health for a Better You

A health diary enables greater understanding about your own health and helps communicate the information in an objective way to healthcare professionals.

Web based and mobile diaries are a tool that can help you discover new information about yourself and provide for a more in dept history of how your treatment is progressing. In fact, it has been proven that maintaining a health diary can lead to a multitude of benefits (see this study). You can easily get into the habit by starting to track the essentials and then slowly adding more items to your care plan as you start to see patterns emerge.

This post is sponsored by CareClinic. Thoughts and opinions shared were my own.

 

Healthline unveils new IBD app: What you need to know

This article is sponsored by Healthline. Thoughts and opinions are my own.

I met my husband thanks to a dating site nearly six years ago. I never dreamed I would one day be able to connect with fellow IBD warriors through an app, but hey thanks to Healthline, it’s now possible! IBD_Facebook_Ads-1200x628_Real-Life_5Over the next month, I’ll be partnering with IBD Healthline. I am so excited to share my journey using the app and explain how you too can benefit from all its invaluable features.

When I was diagnosed with Crohn’s disease at age 21 in 2005, I felt incredibly isolated, alone and scared. Like anyone with chronic illness, it can be difficult to not only articulate theses stresses but find people who genuinely care and empathize. The IBD Healthline app addresses this by providing a safe space to conversate with those who live your reality. By communicating with others in the IBD community, it empowers us and is a reminder that there’s a huge network of support right at our fingertips, 24 hours a day.

My favorite functions of the app

One of my favorite parts of Healthline’s IBD app is how it connects you with one new member each day, based on your disease, age, and lifestyle interests. You can check out fellow member profiles and request to connect, too! IBD_Facebook_Ads-1200x628_Real-Life_2I don’t know about you, but the more people I know with IBD, the stronger it makes me feel as I take on the disease.

Healthline’s IBD app is a great gathering place for our community to share experiences, learn from one another and offer support. Many of us tend to sugarcoat our day-to-day experiences, here you can be honest and trust that you won’t be judged for your struggles or setbacks. It’s intuitive and easy to use, whether you’re a patient or a caregiver.

Along with the personal connections, there are medically approved wellness articles IMG_0811and podcasts shared each week on everything from diagnosis to nutrition and self-care tips. The more educated we are about our illness, the better advocates we can be for our care.

Check out the Live Chats

Another great aspect of the app is the “Live Chat” function. Each Healthline Ambassador will be hosting chats in the coming weeks. Save the date—I’ll be hosting a live chat Monday, June 3 about dating, relationships and marriage with IBD. I’m thrilled to have the opportunity to share my personal insight on this subject matter with you and lead the discussion. It’s my hope my words and patient journey will comfort you and give you hope as you navigate life with IBD.

This free app is brand new and was just launched this month. You can download it onto Apple and Android devices by searching for “IBD Healthline”. As patients we are up against so many unknowns, this app is a great constant to have as you deal with the feel-good days and the not so good days. I look forward to connecting with you all!

You can access the free IBD Healthline app here: https://go.onelink.me/LOC7/6dae5800.

Help manage your IBD in the palm of your hand: Oshi Health launches first all-in-one mobile app

Managing inflammatory bowel disease is no small feat. Whether it’s determining which foods and drinks are your triggers, tracking your fatigue, staying on top of medications, keeping all your doctor’s appointments in order…the list goes on, and it’s a lot. Oftentimes as patients, we have so much to juggle in our everyday life that we can lose sight of when our bodies give us signals that a flare up is on the horizon. It’s can be easy to hide behind a smile and ignore symptoms. Your normal is different than the average persons. Your pain tolerance, perspective and the way you experience life are unique. Most people don’t have to put so much thought into meal time and think of bathroom breaks as a stress.

This is where Oshi Health’s new mobile app comes in. Logo with DARK letters OSHI HEALTHThe app features tracking, curated learning, and expert Q&A. Click here to watch a short YouTube video about all the app has to offer.

As a blogger and patient advocate, I’m thrilled to be one of the contributing writers featured on the app.  You’ll find new articles from me pertaining to dealing with the diagnosis, friendships, relationships and motherhood with IBD. The exclusive content features real-life s  buccess stories, easy-to-understand information on emerging treatments, and delicious IBD-friendly recipes.

Keeping track of daily factors—such as sleep, diet and exercise, along with symptoms can help us better understand the causes of our flare-ups and how to best achieve remission.

The all-in-one app’s features include:

  • Fresh Content: Daily doses of inspiration and information
  • Tracking: Short-term and long-term trends including well-being and symptom scores
  • Integration: Compatibility with leading fitness devices, sensors, and wearables
  • Reminders: Helpful notifications to stay on track with IBD wellness
  • Surveys: Bi-weekly progress checkpoints
  • Expert Q&A: Professional feedback from gastroenterologists and medical professionals
  • Security: Best-In-Class data privacy with state-of-the-art encryption

“Oshi is a free mobile app that empowers individual control and understanding of IBD wellness. DanWeinsteinOshiHealthOshi has the potential to significantly improve lives with smart tools to manage and control Crohn’s disease and ulcerative colitis,” said Daniel Weinstein, CEO, Oshi Health, Inc. “Oshi’s easy-to-use, best-in-class tracking and insights tool will allow patients to work with their physicians to uncover hidden patterns to figure out what triggers flares for their unique bodies.”

The app’s “Ask the Experts” feature further supports your digital experience as a patient or a caregiver. A team of gastroenterologists and health professionals will provide moderated feedback on key questions. You can find answers to your questions right at your finger tips from sources you can trust.

As someone who has battled Crohn’s disease for 13 years, I’m excited an app like this is on the market. I wish I had a tool like Oshi when I was initially diagnosed. A tool that recognizes my needs and concerns. A tool that empowers me to be my own best advocate and stay on top of symptoms. This app is great to have in your back pocket as you attend doctor appointments. You can look at all your information you’ve tracked and be able to communicate clearly what your needs are and where your concerns are. We now have the power to advance our own health care and give our gastroenterologists a clear look at the back story of our day-to-day lives. It’s easy to use, intuitive design, makes managing IBD feel like much less of a chore.

OSHI is now available for download on the Apple App Store or Android Google Play.

Apple iOS: https://bit.ly/Oshi_iOS

Android: https://bit.ly/Oshi_Android

Click here for more information about Oshi Health.