Urgency and visits to the bathroom. Not a topic of conversation anyone prefers to talk about. If anything, it’s taboo and people tend to shy away from the subject, especially those who don’t have inflammatory bowel disease. While IBD is so much more than a “bathroom disease”, those of us with Crohn’s disease and ulcerative colitis tend to spend a lot more time on the porcelain throne than others.
If you’re like me, and have had surgery that involved the removal of your small intestine and part of your colon, it’s commonplace for people to have around three to five loose stools a day. Our bodies just don’t have the proper parts to absorb and digest nutrients like others. I was surprised to find out from my GI that going that many times, is par for the course after bowel resection surgery.
When I visited my GI for a routine appointment last week, she told me those with IBD who have surgery oftentimes have an “issue” called Bile Acid Malabsorption (BAM). BAM causes chronic diarrhea that results from your body producing too much bile acid (or bile salt).
In my case—and for anyone else who has the last part of their small intestine removed…our bodies are unable to absorb bile salt. Bile salts help food get digested as it travels through the small bowel. If you’re like me and don’t have your terminal ileum or ileocecal valve—or if it’s diseased, too much bile salt reaches the colon. Our bodies then send water to the colon, which causes diarrhea.
My doctor recommended I start taking Colestipol as needed. This medication is typically a cholesterol medication, but can be used by Crohn’s patients as a bile acid sequestrant. By taking one pill prior to eating each meal, it helps bind bile acids in the intestines and can prevent the need to go make a mad dash for the bathroom immediately after eating.
I had my small bowel resection in August 2015, this is the first I’ve heard of BAM. I wanted to share this knowledge with you, in case you’ve been overwhelmed with the feeling of being tethered to the bathroom at inopportune times. I’ve only been taking Colestipol before dinner for a few days, but it’s given me peace of mind and comfort already. I wasn’t thrilled to add another pill to my patient repertoire and daily regimen (it’s a horse pill!), but this has the ability to be a game-changer.
Obviously, I’m not a doctor. But, if you have Crohn’s in your small intestine, have had a resection and experience several trips to the bathroom a day, inquire about taking a bile acid pill. See if it can help improve your quality of life, too.
3 thoughts on “Bile Acid Malabsorption and Crohn’s disease”
Good information for those who ‘s Dr.’s have not discussed this medication with their patients. It was a life saver for me for 25 years, I could not have functioned without it. Just an FYI, the pill was recalled in Canada 20 years ago and is now a powder you mix with juice.
I have had Crohn’s for 32 years, after my last 3 surgeries in 2013 & 2014 unfortunately it no longer worked for me, I had lost too much intestine.
For those who may also discovered it isn’t working any longer after more surgeries there is another drug I am having amazing success with, Codeine 30
mg 4 times daily ( 30 min before each meal and one at bedtime). Yes it is a narcotic and yes it is addictive but it works and by Doctor and me are fine with that….IT WORKS and allows to me have the most normal life I have had for more years than I can remember.
I hope this was helpful, this is a tough disease.
I too have crohn’s and have had 3 bowel resections, the last one with multiple complications, mainly in my small bowel, where I came close to dying. I would like to add that I also take Codeine, 2 50mg extended release pills a day and have also found it to be very effective, it allows me to live a more normal life, less cramps, less “surprise” and has allowed weight gain. I have taken that amount for 7 years, twice have had to stop for short periods and while there was some withdrawal, not nearly enough to make me stop the drug permanently, it is so beneficial physically.
My brother suggested I might like this website. He was entirely right. This post actually made my day. You can not imagine simply how much time I had spent for this information! Thanks!