My wishes for the IBD community in 2021

It’s no surprise 2020 was a dumpster fire for many reasons. It was a year of challenges, struggles, worries, frustrations, loneliness, and sadness for many. I don’t expect things to drastically change in 2021, as we’re still in the thick of the pandemic, but I do have some wishes for the IBD community as a whole as we look to the future and beyond. 

I hope you…

*Live in the moment. Rather than get lost in the past and the way things used to be or where you could be or what could happen, focus on the now and the beauty that is still around us.

*Advocate for yourself. Use your voice and speak up about how IBD impacts your health, what changes need to be made in your care, and what you need to thrive. 

*Don’t use social media as a crutch. While social media can be an incredible connector, especially as we stay home and remain socially distant, try not to base your reality off of it. It’s a highlight reel. You know which accounts and which posts cause you to feel a certain way. Protect your mental health and overall well-being by limiting the amount of time you spend on social channels.

*Go after that job, love interest, dream of having a child. Stop thinking you don’t deserve or aren’t capable of achieving your goals because of your chronic illness. The path to reaching the goal may have some detours or look different to you than expected, but go for the gusto. 

*Be proactive with managing your health. Stay on top of all medical appointments, despite the pandemic. As chronic illness patients it’s imperative we manage our care and make it a priority. Leave no stone unturned. Give yourself peace of mind by knowing you did all you could to give yourself the best quality of life.

*Have the hard conversations. Confrontation and difficult talks aren’t anyone’s favorite, but the longer you let something stew, the worse it’s going to be on everyone involved. Internalized stress will only exacerbate your symptoms.

*Celebrate the small victories. These are difficult times, make sure you stop to realize all you are doing and all you’re going through. You may feel stagnant or like you’re not accomplishing much, but each day you’re learning something, growing,  and brightening someone’s day without even knowing it. 

*Get outside more. Fresh air does a world of good. Even in the winter months, when it’s cold, bundle up and try and go for a short walk for a change of scenery. Clear your mind and take in your surroundings. 

*Stop feeling guilty for saying no. This entire pandemic our community has had to feel like the “bad guys” by saying “no” to social gatherings and functions. If you have to second guess something or if a decision doesn’t sit well with you, trust your gut. Don’t worry about disappointing anyone but yourself. Your health and well-being comes first. If someone wants to judge how you manage your safety, let them.

*Are mindful of what gives you energy and what zaps it from you. Focus on the people and activities in your life that make you feel refreshed, alive, and at home. Not everyone is going to love you, not everyone is going to mesh with you, don’t force it. Love the people who love you hard and don’t worry about the rest. 

*Stop the comparison game and focus on all you bring to the world as an individual, despite your illness. Rather than feel like peers have what you need whether relationship wise, lifestyle wise, etc…know that nobody’s life is perfect. Everyone has their own struggles. Chances are you just don’t know about them. Practice gratitude and mindfulness exercises to keep yourself grounded. 

In many ways our IBD has prepared us for coping with and handling with much of this pandemic. Despite the unknown before us, have confidence better times are ahead. With the vaccine available, hope is on the horizon.

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